CORE EXHIBITION → LIVING WITH ENDO
LIVING WITH ENDO
Endometriosis shapes lives in profound ways – from enduring chronic pain to the ongoing struggle of being heard by healthcare providers. In this space, personal stories reveal the unembellished realities of living with the condition.
Ditte
Finland
Ditte was unexpectedly diagnosed with endometriosis at 19 during an emergency visit for suspected appendicitis. Navigating pain, misunderstandings, and self-research, she developed strategies to manage her condition and found strength in community support.
Her story sheds light on an often-overlooked condition affecting millions of women worldwide.
Stephanie
Usa
At 22, after years of seeing multiple doctors, Stephanie finally found one who listened. The diagnosis: stage 4 endometriosis, revealed through surgery. Despite initial relief from treatment, the painful symptoms have since returned, impacting her life in profound ways.
Her journey illustrates the struggle for recognition, understanding, and consistent care for those with this invisible illness.
"I’d had pain ever since I got my period, basically, so it wasn’t anything new to me. For me, it just felt normal. I didn’t even question whether it wasn’t normal because, well, my mom had been taught that pain was just part of it."
Felicia
Sweden
Felicia Cederbladh reflects on her journey with endometriosis, from the long wait for a diagnosis to managing the condition today. She shares the uncertainties of living with the illness and the strategies that help her cope, emphasising the vital support from doctors, friends – and pets.
Veronica
Finland
What is it like to seek an endometriosis diagnosis with limited specialised care? How do you cope with the mental weight of a chronic illness that may worsen and impact the possibility of having children?
Veronica’s story reflects on enduring intense pain, fears of infertility, and finding strength in community support.
"I’d had pain ever since I got my period, basically, so it wasn’t anything new to me. For me, it just felt normal. I didn’t even question whether it wasn’t normal because, well, my mom had been taught that pain was just part of it."
Your Space
Your Story
Are you living with endometriosis? This place is reserved for you. Your thoughts, experiences, and voice matter.
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